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Phoenix Rising A Community for People With Myalgic Encephalomyelitis / Chronic Fatigue Syndrome Search for: Search Popular searches Methylation protocol Vitamin B12 Low-dose naltrexone Pyridostigmine Nimodipine Methylphenidate (Ritalin) Modafinil (Provigil) Aripiprazole (Abilify) D-ribose Amantadine Melatonin Gabapentin (Neurontin) 5-HTP Clonazepam (Klonopin) Amitriptyline (Elavil) Antivirals Antibiotics Oxymatrine (Equilibrant) Valcyte Valtrex Cidofovir (Vistide) IVIG Interferon Ampligen Tenofovir GcMAF Isoprinosine (Imunovir) Enterovirus Coxsackie B virus Echovirus Herpesvirus Epstein-Barr virus Cytomegalovirus HHV-6 Parvovirus B19 Borrelia Chlamydia pneumoniae Varicella zoster virus Herpes Simplex Fatigue Brain fog (cognitive dysfunction) Post-exertional malaise (PEM) Pain Inflammation Sleep Irritable bowel syndrome (IBS) Allergy Orthostatic intolerance Postural orthostatic tachycardia syndrome (POTS) Small intestine bacterial overgrowth (SIBO) Leaky gut Intestinal dysbiosis Hormones Fibromyalgia Lyme disease Dr John Chia Dr Kenny De Meirleir Dr Dan Peterson Dr Nancy Klimas Dr A Martin Lerner Dr Charles W Lapp Dr Paul Cheney Dr Andreas M Kogelnik Dr David Kaufman Dr Lucinda Bateman Dr Alison Bested Dr Bela Chheda Dr Derek Enlander Dr Daniel Dantini Dr Kent Holtorf Dr Jacob Teitelbaum Dr William Pridgen Dr Sarah Myhill Dr William Weir Dr Byron Hyde Dr Rosamund Vallings Prof Ron Davis Dr Bhupesh Prusty Prof Robert Naviaux Prof Ian Lipkin Dr Michael VanElzakker Prof Jose Montoya Dr Jonathan Kerr Dr David Systrom Prof Mady Hornig Prof Carmen Scheibenbogen CFSAC IACFS/ME Ottawa 2011 Reno 2009 San Francisco 2014 Follow: Donate Navigation Home Community Forum About ME/CFS What is ME/CFS? Symptoms I’m Fatigued, Is it ME/CFS? Living with ME/CFS Daily Issues Pacing Your Activities Severe ME Disability Financial Support Treatment Potential treatments Doctors Anesthesia Warnings Research Science of ME/CFS Infections and ME/CFS Related ConditionsAbout Phoenix Rising History Volunteer to Help Keep Us Running Donate to Help Keep Us Running Contact Us Disclaimer May 8, 2023 Jody Smith May 12, 2023 Is International ME/CFS Awareness Day by Jody Smith This year marks 31 years since Thomas Hennessy, Jr. decided that May 12th would be our ME/CFS International Awareness Day. May 12th had been the birthday of army nurse and Red Cross founder Florence Nightingale. After the significant contributions she’d made to the world, she lived with a chronic illness for the last half century of her Continue April 25, 2023 Phoenix Rising Articles Dr. Nina Muirhead: ME Patient and Advocate in the UK By Bronc Dr. Nina Muirhead is a dermatology surgeon and founding member of Doctors for ME in the UK. Since developing ME in 2016 she has done a lot to promote awareness of the disease writing and speaking to various health bodies across the world including a presentation shown at the 71st World Health Assembly. She is Chair of the Continue December 21, 2022 Phoenix Rising Articles Dr. Suzanne Vernon: 25 Years of Trying to Crack the Case of ME/CFS For over 25 years, Dr. Suzanne Vernon has been trying to crack the case of myalgic encephalomyelitis/ chronic fatigue syndrome (ME/CFS). Image courtesy of Dr. Suzanne Vernon. by Bronc I first fell ill with terrible fatigue-like symptoms in the summer of 2010. Besides the bone-crushing fatigue, I felt fearful, confused, perplexed and demoralised by this mysterious illness that had reduced Continue December 13, 2022 Phoenix Rising Articles Understanding Autoimmunity in ME/CFS By Bronc and Eric Pyrrhus For many decades now, people with myalgic encephalomyelitis/ chronic fatigue syndrome (ME/CFS) across the world have had to deal with medical establishments wedded to inaccurate scientific dogma regarding their illness. Alongside this, there has been a disastrous lack of funding for biomedical research into the illness. Thankfully, there is a growing body of open-minded scientists Continue November 5, 2022 Eric Pyrrhus Long COVID in Mexico: Isolation and Disbelief Versión en español • Versão em português By Eric Pyrrhus César Medina climbed mountains, lifted weights, and was an avid cyclist. He had a good job. He had a partner. But everything changed in November 2020, thanks to an infection with the novel coronavirus. Today he lives confined to his bed, abandoned by his partner, unemployed, and wearing special compression Continue October 26, 2022 Phoenix Rising Articles Dr. Natalie Eaton-Fitch Discusses Repurposed Drugs and the Treatment of Myalgic Encephalomyelitis (ME) By Bronc In the world we live in people are suffering from all kinds of illnesses, which require a variety of different medications to treat them. Often, the road to finding a novel medication for a particular illness can take many years, as the money for medical trials usually comes from drug companies who have to spend large amounts of Continue September 1, 2022 Phoenix Rising Articles Scientific Findings Distinguish Between Myalgic Encephalomyelitis and Chronic Fatigue Syndrome By Bronc People living with myalgic encephalomyelitis/ chronic fatigue syndrome (ME/CFS) are definitely not just a little tired.” But they are indeed tired of some things — such as dealing with medical ignorance, the very slow pace of research, and seemingly endless discussions over terminology and definitions. But in science, precise terminology and precise definitions are absolutely essential in order Continue August 15, 2022 Eric Pyrrhus Part 3: The Missing Voices Speak Up in Mexico In the last of a three-part series, people with neuroimmune diseases in Mexico speak up about the wide-ranging consequences of the disease on their life. If you haven’t already read the first part of this series, click here. Versión en español • Versão em português By Eric Pyrrhus There’s so many mysterious or surprising variables in chronic illness,” comments 35-year-old Continue June 30, 2022 Eric Pyrrhus Part 2: The Challenge of Standing up for Patients in Mexico In the second of a three-part series, people describe the challenges of pursuing fundamental rights for patients with neuroimmune diseases in Mexico. If you haven’t already read the first part of this series, click here. Versión en español • Versão em português By Eric Pyrrhus I hope that in the future there will be some doctor, organization or someone who Continue May 12, 2022 Eric Pyrrhus Part 1: Millions Missing in Mexico In the first of a three-part series, people describe the challenges of living with neuroimmune diseases in Mexico. The science of these diseases is also discussed, and we try to understand why the latest science is not informing proper medical treatment. Versión en español • Versão em português By Eric Pyrrhus On days when the symptoms are manageable, I walk Continue May 5, 2022 Jody Smith A Call to Arms: 30th Anniversary of International ME/CFSFibromyalgia Awareness Day by Jody Smith May 12th is a special day in the ME/CFS community. It was English army nurse Florence Nightingale’s birthday. In 1992 Thomas Hennessy, Jr. thought her birthday would be a fitting day for raising awareness for us. Why, you ask? Because Florence Nightingale was amazing. Not only did she help to create the Red Cross, and start the first Continue May 1, 2022 Phoenix Rising Articles What It Is To Be Human: Holobionts and the Microbiology of Myalgic Encephalomyelitis By Bronc Dr. Amy Proal, of the PolyBio Research Foundation, is a microbiologist interested in the molecular mechanisms by which bacterial, fungal and viral pathogens dysregulate human gene expression, immunity and metabolism. She is especially interested in how dysfunction of the human microbiome and/or the human virome can contribute to chronic inflammatory disease processes. We sat down with Dr. Amy Continue Posts navigation 1 2 3 … 71 Next Posts » Phoenix Rising myalgic encephalomyelitis / chronic fatigue syndrome community, forum, and blog. Content on Phoenix...